Knowing, planning for and fearing death: Do adults with intellectual disability and disability staff differ?
Abstract
BACKGROUND: Adults with intellectual disability (ID) are thought to understand less about death than the general population but there is no available research demonstrating this. Further, the detail of any possible differences in understanding is unknown. METHODS: We compared the responses of 39 adults with mild or moderate ID and 40 disability staff (representing the general population) on (a) understanding the concept of death, (b) knowledge of and self-determination about end-of-life planning, and (c) fear-of-death. RESULTS: We found that adults with ID had a significantly poorer understanding of the concept of death, knew much less about and were less self-determined about end-of-life planning, but reported greater fear-of-death. CONCLUSIONS: We demonstrated, for the first time, the feasibility of assessing end-of-life planning and fear-of-death among adults with ID. The poorer understanding and lower levels of self-determination we found suggest that future research should develop and evaluate interventions to increase understanding and self-determination.
Citation
(2016). Knowing, planning for and fearing death: Do adults with intellectual disability and disability staff differ?. Research in Developmental Disabilities, 47 - 59. https://doi.org/10.1016/j.ridd.2015.11.016
Acceptance Date | Nov 17, 2015 |
---|---|
Publication Date | Feb 1, 2016 |
Journal | Res Dev Disabil |
Print ISSN | 0891-4222 |
Publisher | Elsevier |
Pages | 47 - 59 |
DOI | https://doi.org/10.1016/j.ridd.2015.11.016 |
Keywords | intellectual disability, end-of-life, staff, planning, fear-of-death |
Publisher URL | http://www.sciencedirect.com/science/article/pii/S089142221530010X |
Downloadable Citations
About Keele Repository
Administrator e-mail: research.openaccess@keele.ac.uk
This application uses the following open-source libraries:
SheetJS Community Edition
Apache License Version 2.0 (http://www.apache.org/licenses/)
PDF.js
Apache License Version 2.0 (http://www.apache.org/licenses/)
Font Awesome
SIL OFL 1.1 (http://scripts.sil.org/OFL)
MIT License (http://opensource.org/licenses/mit-license.html)
CC BY 3.0 ( http://creativecommons.org/licenses/by/3.0/)
Powered by Worktribe © 2024
Advanced Search