629P Co-producing UK care quality standards in facioscapulohumeral muscular dystrophy (FSHD) in partnership with people with FSHD, carers and healthcare professionals: a qualitative focus group study
(2024)
Presentation / Conference
Leone, E., Pandyan, A., Rogers, A., Kulshrestha, R., Hill, J., & Philp, F. (2024, October). 629P Co-producing UK care quality standards in facioscapulohumeral muscular dystrophy (FSHD) in partnership with people with FSHD, carers and healthcare professionals: a qualitative focus group study. Poster presented at Neuromuscular Disorders WMS Congress Issue - Abstracts 2024, Prague
Outputs (399)
Patient and public involvement in an evidence synthesis project: description of and reflection on involvement (2024)
Journal Article
Thomson, K., Todhunter-Brown, A., Brady, M. C., Campbell, P., Dorris, L., Hunter, S. M., Nicolson, D. J., & Hazelton, C. (2024). Patient and public involvement in an evidence synthesis project: description of and reflection on involvement. Research Involvement and Engagement, 10(1), 1-11. https://doi.org/10.1186/s40900-024-00637-4Background: We conducted an NIHR-funded evidence synthesis project, reviewing evidence relating to interventions for perceptual disorders following stroke. This related paper describes how people with lived experience of stroke-related perceptual dis... Read More about Patient and public involvement in an evidence synthesis project: description of and reflection on involvement.
Quality Indicators for the Primary and Community Care of Musculoskeletal Conditions: A Systematic Review: Quality Indicators for MSK Conditions. (2024)
Journal Article
Braybrooke, A., Baraks, K., Burgess, R., Banerjee, A., & Hill, J. (in press). Quality Indicators for the Primary and Community Care of Musculoskeletal Conditions: A Systematic Review: Quality Indicators for MSK Conditions. Archives of Physical Medicine and Rehabilitation, https://doi.org/10.1016/j.apmr.2024.08.022To identify, appraise, and synthesise common themes from quality indicator (QI) sets designed for the assessment, management, and rehabilitation of musculoskeletal conditions in primary and community care contexts. A systematic search was performed o... Read More about Quality Indicators for the Primary and Community Care of Musculoskeletal Conditions: A Systematic Review: Quality Indicators for MSK Conditions..
Cost-effectiveness of bioimpedance-guided fluid management in patients undergoing haemodialysis: the BISTRO RCT (2024)
Journal Article
Zanganeh, M., Belcher, J., Fotheringham, J., Coyle, D., Lindley, E. J., Keane, D. F., Caskey, F. J., Dasgupta, I., Davenport, A., Farrington, K., Mitra, S., Ormandy, P., Wilkie, M., Macdonald, J. H., Solis-Trapala, I., Sim, J., Davies, S. J., & Andronis, L. (2024). Cost-effectiveness of bioimpedance-guided fluid management in patients undergoing haemodialysis: the BISTRO RCT. Health Technology Assessment, 1-45. https://doi.org/10.3310/jypr4287Background
The BioImpedance Spectroscopy to maintain Renal Output randomised controlled trial investigated the effect of bioimpedance spectroscopy added to a standardised fluid management protocol on the risk of anuria and preservation of residual k... Read More about Cost-effectiveness of bioimpedance-guided fluid management in patients undergoing haemodialysis: the BISTRO RCT.
Study on the Focal Boost to the Dominant Intraprostatic Lesions Using Proton Therapy in High-Risk Prostate Cancer Patients with Pelvic Lymph Node Irradiation: Assessing Toxicity Using the Accumulated Dose Fitted NTCP Models (2024)
Journal Article
Ong, A., Knight, K., Panettieri, V., Dimmock, M., Tuan, J., Tan, H., & Wright, C. (in press). Study on the Focal Boost to the Dominant Intraprostatic Lesions Using Proton Therapy in High-Risk Prostate Cancer Patients with Pelvic Lymph Node Irradiation: Assessing Toxicity Using the Accumulated Dose Fitted NTCP Models. International Journal of Radiation Oncology - Biology - Physics, 120(2), Article e571. https://doi.org/10.1016/j.ijrobp.2024.07.1262Purpose/Objective(s)
This feasibility study investigated focal boosts to the DILs and assessed the clinical impact based on physical dose-volume (DV) and biological metrics compared to the non-boost plans. The bio... Read More about Study on the Focal Boost to the Dominant Intraprostatic Lesions Using Proton Therapy in High-Risk Prostate Cancer Patients with Pelvic Lymph Node Irradiation: Assessing Toxicity Using the Accumulated Dose Fitted NTCP Models.
Exploring stroke survivors’ and physiotherapists’ perspectives of the potential for markerless motion capture technology in community rehabilitation (2024)
Journal Article
Faux-Nightingale, A., Philp, F., Leone, E., Boreman Helliwell, B., & Pandyan, A. (2024). Exploring stroke survivors’ and physiotherapists’ perspectives of the potential for markerless motion capture technology in community rehabilitation. Journal of NeuroEngineering and Rehabilitation, 21(1), Article 168. https://doi.org/10.1186/s12984-024-01467-xIntroduction: Many stroke survivors do not receive optimal levels of personalised therapy to support their recovery. Use of technology for stroke rehabilitation has increased in recent years to help minimise gaps in service provision. Markerless moti... Read More about Exploring stroke survivors’ and physiotherapists’ perspectives of the potential for markerless motion capture technology in community rehabilitation.
A mixed-methods approach exploring acceptability and feasibility of trials designed to test drugs targeting prevention of post-traumatic osteoarthritis after knee injury (2024)
Journal Article
Kalsoum, R., Minns Lowe, C. J., Gilbert, S., McCaskie, A. W., Snow, M., Wright, K., Bruce, G., Mason, D. J., & Watt, F. E. (in press). A mixed-methods approach exploring acceptability and feasibility of trials designed to test drugs targeting prevention of post-traumatic osteoarthritis after knee injury. Bone & Joint Research, 13(9), 513-524. https://doi.org/10.1302/2046-3758.139.BJR-2024-0109Aims
To explore key stakeholder views around feasibility and acceptability of trials seeking to prevent post-traumatic osteoarthritis (PTOA) following knee injury, and provide guidance for next steps in PTOA trial design.
Methods
Healthcare prof... Read More about A mixed-methods approach exploring acceptability and feasibility of trials designed to test drugs targeting prevention of post-traumatic osteoarthritis after knee injury.
The Effectiveness of Footwear Adaptation on Functional Outcomes in People with First Metatarsophalangeal Joint Osteoarthritis (2024)
Presentation / Conference Contribution
Enyinnaya, I., McAloon, M., Ahmed, N., & O’Brien, A. (2024, September). The Effectiveness of Footwear Adaptation on Functional Outcomes in People with First Metatarsophalangeal Joint Osteoarthritis. Presented at British Association of Prosthetists and Orthotists (BAPO) Regional Conference 2024, Tower and Hamilton Suites, Drayton Manor, UK
Infographic. Enhancing performance and stability: the role of abdominal binding in wheelchair rugby (2024)
Journal Article
Pheasey, C., O'Brien, T. J., Sharpe, L., & Goosey-Tolfrey, V. L. (in press). Infographic. Enhancing performance and stability: the role of abdominal binding in wheelchair rugby. British Journal of Sports Medicine, https://doi.org/10.1136/bjsports-2024-108485This infographic offers guidance for sports practitioners and wheelchair rugby (WR) players to enhance performance and stability during WR using abdominal binders. The Paralympic sport of WR is played by individuals with an impairment that affects al... Read More about Infographic. Enhancing performance and stability: the role of abdominal binding in wheelchair rugby.
Variability of cardiopulmonary exercise testing in patients with atrial fibrillation and determination of exercise responders to high-intensity interval training and moderate-to-vigorous intensity continuous training. (2024)
Journal Article
Terada, T., Keir, D. A., Murias, J. M., Vidal-Almela, S., Buckley, J., & Reed, J. L. (2024). Variability of cardiopulmonary exercise testing in patients with atrial fibrillation and determination of exercise responders to high-intensity interval training and moderate-to-vigorous intensity continuous training. Applied Physiology, Nutrition, and Metabolism, https://doi.org/10.1139/apnm-2024-0060Disabling atrial fibrillation (AF)-related symptoms and different testing settings may influence day-to-day cardiopulmonary exercise testing (CPET) measurements, which can affect exercise prescription for high-intensity interval training (HIIT) and m... Read More about Variability of cardiopulmonary exercise testing in patients with atrial fibrillation and determination of exercise responders to high-intensity interval training and moderate-to-vigorous intensity continuous training..