How lived experiences of illness trajectories, burdens of treatment, and social inequalities shape service user and caregiver participation in health and social care: a theory-informed qualitative evidence synthesis
(2025)
Journal Article
May, C. R., Gravenhorst, K. C., Hillis, A., Arber, M., Chew-Graham, C. A., Gallacher, K. I., Mair, F. S., Nolte, E., & Richardson, A. (2025). How lived experiences of illness trajectories, burdens of treatment, and social inequalities shape service user and caregiver participation in health and social care: a theory-informed qualitative evidence synthesis. Health and Social Care Delivery Research, 13(24), 1-120. https://doi.org/10.3310/hgtq8159
Background The workload service users and caregivers take on, and their capacity to do this work, when they engage with and participate in different kinds of care is important. It is reflected in policy and practice interventions that identify servic... Read More about How lived experiences of illness trajectories, burdens of treatment, and social inequalities shape service user and caregiver participation in health and social care: a theory-informed qualitative evidence synthesis.