Co-creation or collusion: The dark side of consumer narrative in qualitative health research.

Abstract

Health, mental health, and social care policy are dominated by the imperative of employing person-centered approaches. Such involvement of the “consumer” is generally claimed to provide a counter-narrative to the psychiatric and medical paradigm of illness. Taking a critical and reflexive standpoint, we find ourselves asking: Is there a dark side to employing person-centered approaches and potential loss and risk to participants themselves? To explore these questions further, we undertook a condensed critique of the current mental health, health, and social care policy arena. We then move to methodological concerns about ways in which person-centered research, including our own, can inadvertently reproduce the neoliberalist agenda. To conclude, we offer our own lived experiences as a cautionary tale. We also posit that a post-Foucauldian governmentality framework can assist researchers to avoid contributing to the very problems we wish to resolve.

Citation

(2016). Co-creation or collusion: The dark side of consumer narrative in qualitative health research. Illness, Crisis and Loss, 251-269. https://doi.org/10.1177/1054137316662576

• Acceptance Date: May 18, 2016
• Publication Date: Aug 11, 2016
• Journal: Illness, Crisis and Loss
• Print ISSN: 1054-1373
• Publisher: SAGE Publications
• Pages: 251-269
• DOI: https://doi.org/10.1177/1054137316662576
• Keywords: loss; bereavement; cancer; illness; qualitative data; research methods; phenomenology; theory; narrative; mental health
• Publisher URL: https://doi.org/10.1177/1054137316662576