Symptoms of chronic fatigue syndrome/myalgic encephalopathy are not determined by activity pacing when measured by the chronic pain coping inventory

Thompson, D.P.; Antcliff, D.; Woby, S.R.

Abstract

Objectives
Chronic fatigue syndrome/myalgic encephalopathy (CFS/ME) is a chronic illness which can cause significant fatigue, pain and disability. Activity pacing is frequently advocated as a beneficial coping strategy, however, it is unclear whether pacing is significantly associated with symptoms in people with CFS/ME. The first aim of this study was therefore to explore the cross-sectional associations between pacing and levels of pain, disability and fatigue. The second aim was to explore whether changes in activity pacing following participation in a symptom management programme were related to changes in clinical outcomes.

Design
Cross-sectional study exploring the relationships between pacing, pain, disability and fatigue (n = 114) and pre–post treatment longitudinal study of a cohort of patients participating in a symptom management programme (n = 35).

Setting
Out-patient physiotherapy CFS/ME service.

Participants
One-hundred and fourteen adult patients with CFS/ME.

Main outcome measures
Pacing was assessed using the chronic pain coping inventory. Pain was measured using a Numeric Pain Rating Scale, fatigue with the Chalder Fatigue Scale and disability with the Fibromyalgia Impact Questionnaire.

Results
No significant associations were observed between activity pacing and levels of pain, disability or fatigue. Likewise, changes in pacing were not significantly associated with changes in pain, disability or fatigue following treatment.

Conclusions
Activity pacing does not appear to be a significant determinant of pain, fatigue or disability in people with CFS/ME when measured with the chronic pain coping index. Consequently, the utility and measurement of pacing require further investigation.

• Journal Article Type: Article
• Online Publication Date: Aug 4, 2017
• Publication Date: 2018-03
• Deposit Date: Jan 8, 2024
• Journal: Physiotherapy
• Publisher: De Gruyter
• Peer Reviewed: Peer Reviewed
• Volume: 104
• Issue: 1
• Pages: 129-135
• DOI: https://doi.org/10.1016/j.physio.2017.07.005