Outputs (5)

Psoriatic Arthritis Priority Setting Partnership: patient- and clinician-informed considerations for future UK health service delivery. (2024)
Journal Article
James, L., Hailey, L., Bundy, C., Burstow, H., Chandler, D., Cowper, R., Helliwell, P., Joannes, L., Kelly, A., Kennedy, B., Kinsella, S., McAteer, H., Mukherjee, S., Packham, J., Wise, E., Young, H., Dures, E., & Coates, L. C. (in press). Psoriatic Arthritis Priority Setting Partnership: patient- and clinician-informed considerations for future UK health service delivery. Rheumatology, 1-6. https://doi.org/10.1093/rheumatology/keae680

Little is known about the ideal service delivery model and shortcomings in patient experiences in the NHS for patients with Psoriatic Arthritis (PsA). To identify unmet needs perceived within the current health service delivery model for PsA from the... Read More about Psoriatic Arthritis Priority Setting Partnership: patient- and clinician-informed considerations for future UK health service delivery..

Incidence of psoriatic arthritis in a UK primary care psoriasis population. (2024)
Journal Article
Rudge, A., Brown, S. T., Ransom, M., Helliwell, P. S., Packham, J., Tillett, W., Smith, T., & McHugh, N. J. (2024). Incidence of psoriatic arthritis in a UK primary care psoriasis population. The Journal of Rheumatology, 51(9), Article jrheum.2024-0556. https://doi.org/10.3899/jrheum.2024-0556

To determine the annual incidence of psoriatic arthritis in a UK primary care population with preexisting psoriasis followed prospectively over two years after excluding baseline prevalence of existing disease. TUDOR (Total bUrDen of psORiasis) was a... Read More about Incidence of psoriatic arthritis in a UK primary care psoriasis population..

Enhanced surveillance for the detection of psoriatic arthritis in a UK primary care psoriasis population: results from the TUDOR trial (2024)
Journal Article
McHugh, N., Tillett, W., Helliwell, P., Packham, J., Collier, H., Davies, C., Ransom, M., Coates, L., & Brown, S. T. (in press). Enhanced surveillance for the detection of psoriatic arthritis in a UK primary care psoriasis population: results from the TUDOR trial. Rheumatology, Article keae374. https://doi.org/10.1093/rheumatology/keae374

Background Our objective was to determine whether early detection of undiagnosed psoriatic arthritis (PsA) in a primary care psoriasis population improves outcome in physical function at 24 months post-registration. Methods A multicentre, prospective... Read More about Enhanced surveillance for the detection of psoriatic arthritis in a UK primary care psoriasis population: results from the TUDOR trial.

E041 Feasibility and acceptability of electronic patient reported outcome measures in the routine care of people with inflammatory arthritis: Haywood Arthritis Portal study (2024)
Presentation / Conference Contribution
Cox, N., Kettle, C., Wang, H., Dutta, S., Packham, J., Galloway, J., Hill, J., Muller, S., Hider, S., Paskins, Z., Bullock, L., & Scott, I. C. (2024, April). E041 Feasibility and acceptability of electronic patient reported outcome measures in the routine care of people with inflammatory arthritis: Haywood Arthritis Portal study. Poster presented at British Society for Rheumatology Annual Conference 2024

Background/Aims Electronic patient-reported outcome measures (ePROMs) assessing disease activity, function, pain, and quality of life can facilitate innovative inflammatory arthritis (IA) care, such as automating patient-initiated follow-up. This mix... Read More about E041 Feasibility and acceptability of electronic patient reported outcome measures in the routine care of people with inflammatory arthritis: Haywood Arthritis Portal study.

Barriers and facilitators in diagnosing axial spondyloarthritis: a qualitative study (2024)
Journal Article
Hay, C. A., Packham, J., Prior, J. A., Mallen, C. D., & Ryan, S. (2024). Barriers and facilitators in diagnosing axial spondyloarthritis: a qualitative study. Rheumatology International, 44, 863–884. https://doi.org/10.1007/s00296-024-05554-z

Diagnosis of axial spondyloarthritis (axSpA) is frequently delayed for years after symptom onset. However, little is known about patient and healthcare professional (HCP) perspectives on barriers and facilitators in axSpA diagnosis. This study explor... Read More about Barriers and facilitators in diagnosing axial spondyloarthritis: a qualitative study.