A. Bosworth
POS0194-PARE USE OF E-LEARNING IMPROVES KNOWLEDGE AND CONFIDENCE TO MANAGE PAIN AND FLARES IN RA
Bosworth, A.; Scott, I.
Abstract
Background:
An often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding of their disease and building their ability to deal with the practical, physical and psychological impacts of it. The ability to self-manage in IA represents an essential component of care that goes beyond drug therapy and in July 2021, a EULAR Taskforce published evidence-based Recommendations for Self-Management strategies in patients with IA. At the end of 2021 NRAS launched an e-learning programme, SMILE-RA, to address the needs of people with RA to learn to self-manage well. The module on Managing Pain & Flares was developed in partnership with the rheumatology team at MPFT.
Objectives:
The aims of this service evaluation were to assess:
•
patients' knowledge and confidence at self-managing their arthritis pain and flares before and after module completion
•
the burden of pain on patients' lives
•
the extent to which patients used module suggestions
Methods:
To address the above issues, NRAS and Dr. Ian Scott with members of the MDT at MPFT, who co-produced this module with NRAS, collaborated to develop a survey which was sent to 500 people with RA who had completed the module on Managing Pain and Flares within SMILE-RA on 25th March 2024. Reminders to complete the survey were sent and it closed on 12th May. NRAS received 134 completed surveys representing a 26.8% response rate which is high. People completing the survey may have completed the module at any time since 2021. Some people may have completed the module more than once. NRAS set learning objectives at the start of each module and measure learning outcomes at the end in each module within SMILE-RA. Learning objectives are generally met with scores between 92-100% for all modules.
Results:
Most participants were aged between 41-60 years (31%), and 61-80 years (63%). As expected, the majority were female (83%) and of white British ethnicity (91%). 96% had a diagnosis of RA with the remainder reporting they had other another type of inflammatory rheumatic disease. Most had 1-5 years (37%) or over 10 years (40%) since their arthritis diagnosis; the remainder had less than one year (14%) and 6-10 years (10%). Knowledge and Confidence Before and After the Module: There was a substantial increase in levels of knowledge about pain and flares following undertaking the module. 35.8% rated themselves as being “very” or “fairly” knowledgeable about pain before completing the module, increasing to 75.4% after completing the module. For flares these results were 29.9%, rising to 68.7%. Similar findings were seen for confidence at managing pain and flares. 28.4% rated themselves as “very” or “fairly” confident at managing their pain before completing the module, rising to 59.7% after module completion. For flares, these results were 23.1% and 50.0%. In addition to the above results, we also asked participants how likely they were to try some of the non-pharmacological suggestions to manage pain and flares in the survey and 43.3% and 41.8% said they were “very likely” or “likely” for pain and flares, respectively. Of those people experiencing pain in the past 3 months, many took pain medicines in the past month, with 62% reporting using paracetamol, 24% Co-codamol/Co-dydramol, 32% oral Non-Steroidal Anti-Inflammatories (NSAIDs), 18% topical NSAIDs, 5% Tramadol, 2% pain patches, 2% Gabapentin or Pregabalin, and 18% other over the counter pain medicines. Only 13% reported not taking any pain medicines in the last month. Many participants had also found non-medication methods to manage pain helpful, including heat therapy (64%), cold therapy (23%), pacing (41%), stress management (25%), distraction (23%), and relaxation (31%).
Conclusion:
This evaluation of the NRAS SMILE Managing Pain and Flares module has three key findings. First, it highlights the ongoing impact of chronic pain in people with rheumatoid arthritis, with two thirds of people giving module feedback having chronic pain, which was “high impact” in one third of people. Second, it demonstrates that people with RA use a broad range of methods to self-manage their pain, spanning analgesics (particularly paracetamol), and non-drug approaches (with two thirds finding exercise and heat therapy helpful, and one half finding staying positive helpful). Third, it shows that many people felt that their knowledge about their pain and flares, and confidence in managing these were substantially enhanced through undertaking the module. Overall, these findings indicate that the module has an important role to play in enabling people with RA to better self-manage their arthritis related pain and flares which has cost-saving implications for the NHS.
REFERENCES:
NIL.
Acknowledgements:
Acknowledgement to the multidisciplinary team at the MPFT and the Haywood Hospital, Stoke-on-Trent.
Disclosure of Interests:
Ailsa Bosworth NRAS has received educational grants from a number of pharmaceutical companies but not in relation to this abstract, Ian Scott: None declared.
© The Authors 2025. This abstract is an open access article published in Annals of Rheumatic Diseases under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). Neither EULAR nor the publisher make any representation as to the accuracy of the content. The authors are solely responsible for the content in their abstract including accuracy of the facts, statements, results, conclusion, citing resources etc.
Citation
Bosworth, A., & Scott, I. (2025, June). POS0194-PARE USE OF E-LEARNING IMPROVES KNOWLEDGE AND CONFIDENCE TO MANAGE PAIN AND FLARES IN RA. Poster presented at EULAR 2025: European Congress of Rheumatology, Barcelona, Spain
Presentation Conference Type | Poster |
---|---|
Conference Name | EULAR 2025: European Congress of Rheumatology |
Start Date | Jun 11, 2025 |
End Date | Jun 14, 2025 |
Acceptance Date | Jun 11, 2025 |
Online Publication Date | Jun 18, 2025 |
Publication Date | Jun 18, 2025 |
Deposit Date | Jun 30, 2025 |
Journal | Annals of the Rheumatic Diseases |
Print ISSN | 0003-4967 |
Electronic ISSN | 1468-2060 |
Publisher | BMJ Publishing Group |
Peer Reviewed | Peer Reviewed |
Volume | 84 |
Issue | S1 |
Pages | 475-476 |
DOI | https://doi.org/10.1016/j.ard.2025.05.581 |
Public URL | https://keele-repository.worktribe.com/output/1283350 |
Publisher URL | https://www.sciencedirect.com/science/article/abs/pii/S0003496725016140?via%3Dihub |
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