PATIENT AND PUBLIC VIEWS OF BISPHOSPHONATE DECISION AIDS: NOT FIT FOR PURPOSE

Paskins, Z.; Worrall, A.; Chapman, S.

Abstract

Objectives: Decision aids (DAs) can be used to facilitate communication of the risks and benefits of treatment with patients. Two small trials have reported the use of one osteoporosis DA resulted in improvements in satisfaction, knowledge, and patient engagement, with small improvements in bisphosphonate adherence. However, in the UK, DAs are not being used in clinical practice. We conducted a qualitative evaluation of existing DAs with a Patient and Public Involvement and Engagement (PPIE) group, and additionally report PPIE priorities for future research in this area.

Methods: During a meeting with PPIE members of our Osteoporosis Research User Group, 2 web-based and 2 paper DAs were reviewed: Mayo Clinic Osteoporosis DA; Health Decision Osteoporosis Shared Decision Making Tool; Cochrane Fosamax DA and National Institute for Health and Care Excellence (NICE) bisphosphonate decision support tool. The group was asked to comment on general impressions, suitability of the DA for use in the consultation, whether or not information was relevant or individual to their needs and their requirements for a new DA. A thematic analysis of discussion notes was conducted.

Results: No DA was perceived as wholly meeting patient needs. Paper based DAs were perceived as too complicated and not understandable. Insufficient information was perceived as given about adverse effects, and it was noted that information on side effects was inconsistent between DAs. Cates plots used to convey fracture risk were welcomed but too small, using inappropriate colours or did not convey individualised fracture risk. Web-based tools were preferred, and PPIE members wanted a DA that could be used quickly within time constraints of the consultation, with a print-out to be referred to afterwards. Conclusions: Existing DAs for bisphosphonate starters do not meet patient needs. Future research in this area needs to engage with PPIE, and clinicians, to ensure DAs meet the needs of stakeholders.

Citation

Paskins, Z., Worrall, A., & Chapman, S. (2018, April). PATIENT AND PUBLIC VIEWS OF BISPHOSPHONATE DECISION AIDS: NOT FIT FOR PURPOSE. Poster presented at World Congress on Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (WCO-IOF-ESCEO 2018), Krakow, Poland

• Presentation Conference Type: Poster
• Conference Name: World Congress on Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (WCO-IOF-ESCEO 2018)
• Conference Location: Krakow, Poland
• Start Date: Apr 19, 2018
• End Date: Apr 22, 2018
• Deposit Date: Jun 26, 2023
• Publisher URL: https://link.springer.com/article/10.1007/s00198-018-4465-1