Pierangelo Veltri
Proposal for a Patient Centered Health Information Framework for Clinical and Personal Data Movement.
Veltri, Pierangelo; Meijer, Wouter; Rajput, Vije Kumar
Authors
Wouter Meijer
Vije Kumar Rajput
Abstract
This paper focuses on defining a framework to allow individual patients to track their own health related data. We propose a Patient Centered Information Framework (PCIF) allowing patient to manage their own data by using discharge letters. Discharge letters summarize information from a hospital stay, such as medical history, diagnoses, treatments and follow up, needed for continuity of care. It enables patients to share data with different organizations ensuring personal data protection, even when moving from different places and countries. A record of clinical management may thus be guaranteed when moving among different health structures as well as simplifying obtaining medications. We propose an approach to allow citizens to manage their health related data in a cross borders fashion. We compare the regulation of discharge letters among a sample of countries. We propose a management protocol for using a commonly adopted patient discharge letter framework within a PCIF.
Citation
Veltri, P., Meijer, W., & Rajput, V. K. (2024). Proposal for a Patient Centered Health Information Framework for Clinical and Personal Data Movement. In Digital Health and Informatics Innovations for Sustainable Health Care Systems (159-163). SAGE Publications. https://doi.org/10.3233/SHTI240368
| Acceptance Date | Aug 1, 2024 |
|---|---|
| Publication Date | Aug 22, 2024 |
| Deposit Date | Sep 12, 2024 |
| Publisher | SAGE Publications |
| Pages | 159-163 |
| Series Title | Studies in Health Technology and Informatics |
| Book Title | Digital Health and Informatics Innovations for Sustainable Health Care Systems |
| DOI | https://doi.org/10.3233/SHTI240368 |
| Keywords | Patient Discharge, Health Records, Personal, Confidentiality, Patient, Humans, Patient-Centered Care, information systems, Electronic Health Records, international patient summary, personal health record, discharge letter |
| Public URL | https://keele-repository.worktribe.com/output/892022 |
| Publisher URL | https://ebooks.iospress.nl/doi/10.3233/SHTI240368 |