Access to psychological support for young people following stoma surgery: Exploring patients’ and clinicians’ perspectives

Polidano, Kay; Chew-Graham, C; Farmer, A; Saunders, Benjamin

Abstract

Psychological problems are common among people with inflammatory bowel disease (IBD) following stoma surgery. However, the ways in which stoma-related psychological needs are identified and addressed in healthcare settings remain unexplored. In this study, we investigated the perspectives of young people with a stoma and healthcare professionals about access to psychological support. Semi-structured interviews were conducted with young people with an IBD stoma (18-29 years) (n=13) and healthcare professionals (n=15), including colorectal surgeons, gastroenterologists, specialist nurses in IBD and stoma care, and general practitioners in England. Data collection and analysis were informed by constructivist grounded theory. Three analytic categories were developed: ‘initiating support-seeking’, ‘affirming psychological needs’, and ‘mobilizing psychological support’, which capture young peoples’ trajectory to accessing psychological support. Based on the findings, we highlight the need for both patients and healthcare professionals to assign greater priority to the identification of psychological symptoms post-stoma surgery. More effective care pathways, which include responsive psychological services, would enhance access to psychological support for young people with a stoma.

Citation

Polidano, K., Chew-Graham, C., Farmer, A., & Saunders, B. (2020). Access to psychological support for young people following stoma surgery: Exploring patients’ and clinicians’ perspectives. Qualitative Health Research, 31(3), 535-549. https://doi.org/10.1177/1049732320972338

• Journal Article Type: Article
• Acceptance Date: Oct 16, 2020
• Online Publication Date: Nov 23, 2020
• Publication Date: Nov 23, 2020
• Publicly Available Date: Jun 20, 2023
• Journal: Qualitative Health Research
• Print ISSN: 1049-7323
• Publisher: SAGE Publications
• Peer Reviewed: Peer Reviewed
• Volume: 31
• Issue: 3
• Pages: 535-549
• DOI: https://doi.org/10.1177/1049732320972338
• Keywords: stoma surgery, access to psychological support, chronic illness, qualitative, constructivist grounded theory, United Kingdom
• Publisher URL: http://doi.org/10.1177/1049732320972338