All Outputs (2)

629P Co-producing UK care quality standards in facioscapulohumeral muscular dystrophy (FSHD) in partnership with people with FSHD, carers and healthcare professionals: a qualitative focus group study (2024)
Presentation / Conference
Leone, E., Pandyan, A., Rogers, A., Kulshrestha, R., Hill, J., & Philp, F. (2024, October). 629P Co-producing UK care quality standards in facioscapulohumeral muscular dystrophy (FSHD) in partnership with people with FSHD, carers and healthcare professionals: a qualitative focus group study. Poster presented at Neuromuscular Disorders WMS Congress Issue - Abstracts 2024, Prague

Effectiveness of conservative non-pharmacological interventions in people with muscular dystrophies: a systematic review and meta-analysis (2023)
Journal Article
Leone, E., Pandyan, A., Rogers, A., Kulshrestha, R., Hill, J., & Philp, F. (2023). Effectiveness of conservative non-pharmacological interventions in people with muscular dystrophies: a systematic review and meta-analysis. Journal of Neurology, Neurosurgery and Psychiatry (JNNP), jnnp-2023-331988. https://doi.org/10.1136/jnnp-2023-331988

Management of muscular dystrophies (MD) relies on conservative non-pharmacological treatments, but evidence of their effectiveness is limited and inconclusive. To investigate the effectiveness of conservative non-pharmacological interventions for MD... Read More about Effectiveness of conservative non-pharmacological interventions in people with muscular dystrophies: a systematic review and meta-analysis.