Skip to main content

Research Repository

Advanced Search

Outputs (11)

Raising the Standards of Public Involvement in Clinical Trials (2019)
Presentation / Conference
Blackburn, S., Rhodes, C., Higginbottom, A., Campbell, L., User Group, R., Foster, N., & Dziedzic, K. (2019, October). Raising the Standards of Public Involvement in Clinical Trials. Poster presented at 5th International Clinical Trials Methodology Conference (ICTMC 2019), Brighton, UK

Introduction: The UK National Standards for Public Involvement in
research have recently been launched to improve the quality of
public involvement. Keele University is one of the ten test sites
nationally developing ways to put the six National S... Read More about Raising the Standards of Public Involvement in Clinical Trials.

Patient and Public Involvement and Engagement in a doctoral research project exploring self-harm in older adults (2019)
Journal Article
Troya, M. I., Chew-Graham, C. A., Babatunde, O., Bartlam, B., Higginbottom, A., & Dikomitis, L. (2019). Patient and Public Involvement and Engagement in a doctoral research project exploring self-harm in older adults. Health Expectations, 22(4), 617-631. https://doi.org/10.1111/hex.12917

Background
The contribution of involving patients and public in health research is widely reported, particularly within mental health research. Less is written about such contributions to doctoral research. The research focus of this doctoral resear... Read More about Patient and Public Involvement and Engagement in a doctoral research project exploring self-harm in older adults.

OP0294-PARE Addressing key challenges of lay involvement in musculoskeletal research: co-applicants and trial steering committees (2018)
Presentation / Conference
Higginbottom, A., Blackburn, S., Taylor, R., Rhodes, C., Campbell, L., & Dziedzic, K. (2018, June). OP0294-PARE Addressing key challenges of lay involvement in musculoskeletal research: co-applicants and trial steering committees. Paper presented at Annual European Congress of Rheumatology, EULAR 2018, Amsterdam, 13–16 June 2018

Background Patient and Public Involvement (PPI) in research is a requirement of funding in the UK. It has shown to improve the relevance and quality of research. For over 10 years, a Research User Group (RUG) of over 100 patients with musculoskeletal... Read More about OP0294-PARE Addressing key challenges of lay involvement in musculoskeletal research: co-applicants and trial steering committees.

Process and impact of patient involvement in a systematic review of shared decision making in primary care consultations (2016)
Journal Article
Hyde, C., Dunn, K. M., Higginbottom, A., & Chew-Graham, C. A. (2016). Process and impact of patient involvement in a systematic review of shared decision making in primary care consultations. Health Expectations, 298-308. https://doi.org/10.1111/hex.12458

BACKGROUND: Patient and public involvement and engagement (PPIE) in systematic reviews remains uncommon, despite the policy imperative for patient involvement in research. The aim of this study was to investigate the process and impact of collaborati... Read More about Process and impact of patient involvement in a systematic review of shared decision making in primary care consultations.

The OARSI standardised definition of osteoarthritis: A lay version (2016)
Journal Article
Blackburn, S., User Group, R., Rhodes, C., Higginbottom, A., & Dziedzic, K. (2016). The OARSI standardised definition of osteoarthritis: A lay version. Osteoarthritis and Cartilage, 24(S1), S192 -S192. https://doi.org/10.1016/j.joca.2016.01.379

Purpose: A standard definition has been produced by OARSI to achieve consensus for defining and classifying for osteoarthritis (OA). The aim is to “facilitate communication about the disease among industry and non-industry researchers, regulatory age... Read More about The OARSI standardised definition of osteoarthritis: A lay version.

Patient-reported quality indicators for osteoarthritis: a patient and public generated self-report measure for primary care (2016)
Journal Article
Blackburn, S., Higginbottom, A., Taylor, R., Bird, J., Østerås, N., Birger Hagen, K., …Dziedzic, K. (2016). Patient-reported quality indicators for osteoarthritis: a patient and public generated self-report measure for primary care. Research Involvement and Engagement, 2, Article 5. https://doi.org/10.1186/s40900-016-0019-x

Background

People with osteoarthritis (OA) desire high quality care, support and information about OA. However, the quality of care for people with OA in general practice is not routinely collected. Quality Indicators (QI) can be used to benefit p... Read More about Patient-reported quality indicators for osteoarthritis: a patient and public generated self-report measure for primary care.

Self reported quality care for knee osteoarthritis: comparisons across Denmark, Norway, Portugal and UK (2015)
Journal Article
Østerås, N., Jordan, K. P., Clausen, B., Cordeiro, C., Dziedzic, K., Edwards, J., …Hagen, K. B. (2015). Self reported quality care for knee osteoarthritis: comparisons across Denmark, Norway, Portugal and UK. RMD Open, 1(1), https://doi.org/10.1136/rmdopen-2015-000136

Objectives To assess and compare patient perceived quality of osteoarthritis (OA) management in primary healthcare in Denmark, Norway, Portugal and the UK.

Methods Participants consulting with clinical signs and symptoms of knee OA were identified... Read More about Self reported quality care for knee osteoarthritis: comparisons across Denmark, Norway, Portugal and UK.