Vascular Registries Contributing to VASCUNET Collaborative Abdominal Aortic Aneurysm Outcome Projects: A Scoping Review.

Pouncey, Anna L; Meuli, Lorenz; Lopez-Espada, Cristina; Budtz-Lilly, Jacob; Boyle, Jonathan R; Behrendt, Christian-Alexander; Mani, Kevin; Pherwani, Arun D

Abstract

Vascular surgery registries report on procedures and outcomes to promote patient safety and drive quality improvement. International registries have significantly contributed to the VASCUNET collaborative abdominal aortic aneurysm (AAA) outcome projects. This scoping review aimed to outline the national registries in vascular surgery that currently participate in the VASCUNET collaborative AAA projects. A scoping review of all published VASCUNET AAA studies and validation reports between 1997 and 2024 was undertaken. A survey was conducted among representatives of the international vascular registries contributing to VASCUNET collaborative AAA projects. Currently, vascular registries from 10 countries (Australia, Denmark, Finland, Hungary, Iceland, New Zealand, Norway, Sweden, Switzerland, and the UK) contribute to the current VASCUNET collaborative AAA project, of which eight have national coverage. In the past, three countries (Germany, Malta, and Italy) have participated in previous VASCUNET AAA projects, and a further three countries (Serbia, Greece, and Portugal) have planned participation in future projects. External validity is high for all current registries, with most reporting rates of > 90%. The majority have internal validation processes to assess data accuracy. VASCUNET mediated validation has also been performed by the consortium for five countries to date (Hungary, Sweden, Denmark, Malta, and Switzerland), for which a high degree of external and internal validity was identified. Most registries have established mechanisms for data linkage with national administrative datasets or insurance claims datasets, and contribute to quality improvement through regular reporting to participating centres. National vascular registries from nations participating in the VASCUNET collaborative AAA projects are largely comprehensive, with high case ascertainment rates and good quality data with internal quality assurance. This provides a template for new registries wishing to join the VASCUNET collaboration and a benchmark for future research. [Abstract copyright: Copyright © 2024. Published by Elsevier B.V.]

Citation

Pouncey, A. L., Meuli, L., Lopez-Espada, C., Budtz-Lilly, J., Boyle, J. R., Behrendt, C.-A., …Pherwani, A. D. (in press). Vascular Registries Contributing to VASCUNET Collaborative Abdominal Aortic Aneurysm Outcome Projects: A Scoping Review. European Journal of Vascular and Endovascular Surgery, 68(2), 152-160. https://doi.org/10.1016/j.ejvs.2024.04.037

• Journal Article Type: Article
• Acceptance Date: Apr 25, 2024
• Online Publication Date: Apr 30, 2024
• Deposit Date: Aug 9, 2024
• Journal: European journal of vascular and endovascular surgery : the official journal of the European Society for Vascular Surgery
• Print ISSN: 1078-5884
• Publisher: Elsevier
• Peer Reviewed: Peer Reviewed
• Volume: 68
• Issue: 2
• Pages: 152-160
• DOI: https://doi.org/10.1016/j.ejvs.2024.04.037
• Keywords: VASCUNET, Abdominal aortic aneurysm, Registries
• Public URL: https://keele-repository.worktribe.com/output/829604